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11q Research & Resource Group knows that our strength lies not only in the words we stand by, but most importantly through the actions of our initiatives. Back in 2000, our Non-Profit Organization realized that by working together we could overcome our challenges much more efficiently, and that is why we ultimately decided to launch 11q Research & Resource Group.

Our mission is to provide support and organizational efforts for the parents, as well as friends and family, of all children with 11th chromosome abnormalities, including deletions (monosomy), duplications (trisomy) and translocations. Through networking, cooperation with the research community, and the resulting sharing of information, we will be better able to meet the challenges brought to us as parents, families and friends of 11q children.




help support the 11q research and resource group

be a regional rep

we are looking for a regional rep for the Texas/Louisiana/Arkansas region

help with the conference

assist with the next conference in Arlington, VA, coming July 2022

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