video recordings from previous conferences
These on demand videos provide information from lead researchers, from around the world, for Jacobsen Syndrome and are being provided as an ongoing resource for patients, parents, caregivers, doctors and to provide greater awareness of this rare condition.
UNDERSTANDING JACOBSEN SYNDROME
Parents learning about Jacobsen syndrome should receive accurate and up-to-date resources. This information should include common life outcomes and development, possible medical issues and treatments, and helpful services. Expectant parents should also receive clear information about testing and pregnancy management. Together, health professionals and support groups can provide a range of information to give parents a well-rounded understanding of Jacobsen syndrome.