PARENT RECCOMENDATIONS

helpful support groups recommended by 11q families

HYPOTONIA PARENT SUPPORT GROUP

An online support group for parents of children who have been diagnosed with low muscle tone (hypotonia). The conversations held in this group are opinions and personal experiences of group members, and are not be confused with medical advice from your doctor.

PARENTS OF KIDS WITH EPILEPSY AND SEIZURES

This is a group for all parents who have kids with epilepsy... All are welcome... It does not matter why or how... Just a place for parents to have emotional support...

PARENTS OF CHILDREN WITH HEARING AIDS

A place for parents to come together and discuss their stories, experiences, share information and find support while going through life with children who wear Hearing Aids!

This group is for those who are or know someone affected by malrotation of the bowel (Intestinal Malrotation) and also to spread awareness of this rare condition!

A place for parents of infants/children with feeding disorders, Failure to Thrive and GERD to offer eachother support and advice. Many of us mom's also have kiddos with feeding tubes or are in the process of weaning.

The majority of children with malrotation develop symptoms within the first year of life. Intestinal malrotation is most often recognized in infancy, as most infants develop symptoms of acute bowel obstruction within the first week of life. Malrotation is rarely seen in older children, and when it does occur, symptoms may be absent or intermittent.

APRAXIA KIDS: OFFICIAL SUPPORT GROUP

The Apraxia Kids Official Support Group is for parents, family members, professionals, and friends impacted by childhood apraxia of speech. This group is moderated and curated by the staff at Apraxia Kids. Apraxia Kids is the ONLY national public charity (501c3) dedicated exclusively to children with apraxia of speech and their families. You can learn more about Apraxia Kids at www.apraxia-kids.org

APRAXIA KIDS: OFFICIAL SUPPORT GROUP

The Apraxia Kids Official Support Group is for parents, family members, professionals, and friends impacted by childhood apraxia of speech. This group is moderated and curated by the staff at Apraxia Kids. Apraxia Kids is the ONLY national public charity (501c3) dedicated exclusively to children with apraxia of speech and their families. You can learn more about Apraxia Kids at www.apraxia-kids.org

This is all about ways to MAKE IT work for our kids, homemade, re-purposed, new, used in a new way. The focus is physically challenged and developmentally delayed, and all special needs are welcome if you think you can benefit.


This group is a place to share ideas and tips about making equipment, clothing, food, toys, mechanical, electrical, techy, and other for our special needs children. Somethings can't be easily made and help finding the right item for the right price is appreciated. Also appreciate ideas of how purchased items may be creatively used.

SPECIAL SUPPORT

support geared toward family and educational life

IEP/504 ASSISTANCE

This is a national group that provides support and advice to parents struggling with the special education system (IEPs and 504s). Our goal to help parents educate themselves so they can be the best advocate for their children!

A group to provide AMAZING Christmas ideas for our special needs children. Please feel free to post incredible Christmas gift ideas and links and lets make it an extra special holiday. Don't forget to post ideas on what to get therapists and care providers as Christmas gifts as well. After the holidays the page opens up for continued help and assistance with therapies, equipment, advice and anything you need help with!

SPECIAL NEEDS SWAP

This group is for special needs parents, families, and individuals. I find it's sometimes difficult to get the things we need, extra medical supplies, equipment, or just the small things that make our everyday easier. So, if you have or are looking for certain items for sale, trade, or to give, post it. Discussions, questions, awareness, awareness items, promotion of essential oils, or any helpful links/websites and groups are all welcomed.

The Apraxia Kids Official Support Group is for parents, family members, professionals, and friends impacted by childhood apraxia of speech and is for buying and selling items related to childhood apraxia of speech, including tools for speech practice, books, fundraisers, and contests.

APPS FOR APRAXIA KIDS

This group is for sharing information on apps designed for practicing speech, AAC, and using technology in creative ways for treating childhood apraxia of speech.

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